Ar veselību saistītā dzīves kvalitāte personām ar kakla muskuļu distoniju
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Date
2020
Authors
Journal Title
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Volume Title
Publisher
Rīgas Stradiņa universitāte
Rīga Stradiņš University
Rīga Stradiņš University
Abstract
Pētījuma nosaukums: Ar veselību saistītā dzīves kvalitāte personām ar kakla muskuļu distoniju
Ievads: Personas ar kakla muskuļu distoniju cieš no funckionālajiem traucējumiem, kuri apgrūtina ikdienas aktivitāšu veikšanu un dalību. Šo traucējumu kopums izraisa būtisku dzīves kvalitātes pasliktināšanos.
Mērķis: Uzzināt personu ar kakla muskuļu distoniju viedokli par savu ar veselību saistīto dzīves kvalitāti
Pētījuma dizains: Kvalitatīvs pētījums
Pētījuma metodes: Pētījumā tika iekļautas četras personas ar kakla muskuļu distoniju. Lai noskaidrotu pētījuma dalībnieku viedokli un pieredzi par dzīves kvalitāti ikdienā., izmantojot daļēji strukturētu interviju. Intervijas transkriptiem, tika pielietota induktīvā metode. Datu analīzei tika izmantota kontentanalīze jeb satura analīze, kas ļāva apstrādāt lielu informācijas apjomu sagrupējot to detalizētākā un īsākā kopsavilkumā.
Rezultāti: Personām ar kakla muskuļu distoniju, kas skar ķermeņa funkcijas un struktūras, tās kopumā mazina šo personu dzīves kvalitāti. Emcionālā nestabilitāte ir viens no aspektiem, kas negatīvi ietekmē dzīves kvalitāti. Lielākais izaicinājums, ir ilga uzturēšanās sabiedriskajās vietās, veidojas stresa situācija, kas veicina galvas, sejas trīces palielinašanos.
Secinājumi:
1. Personas ar kakla muskuļu distoniju uzskata, ka viņu dzīves kvalitāti negatīvi iespaido slimības ietekmē radušies funkcionēšanas, aktivitāšu un dalības ierobežojumi.
2. Sāpes, ķermeņa daļu nekontrolētas kustības un piespiedu poza ir fiziskie traucējumi, kurus personas ar kakla muskuļu distoniju atzīst, kā būtiskus aspektus, kas ierobežo viņu dzīves kvalitāti.
3. Personas ar kakla muskuļu distoniju uzskata, ka izaicinājums ir uzturēšanās sabiedrībā un komunicēšana ar citām personām, jo slimības dēļ izmainās ārējais izskats, tas, savukārt, veicina sabiedrības nevēlēšanos kontaktēties ar šīm personām.
Atslēgas vārdi: Kakla muskuļu distonijas; dzīves kvalitāte;
Research Title: Health-related quality of life for people with cervical muscle dystonia. Objective: People with cervical muscle dystonia suffer from functional disorders that make it difficult to perform and participate in daily activities. The combination of these disorders leads to a significant deterioration in the quality of life. Aim of the Study: To find out the opinion of a person with cervical muscle dystonia about their health-related quality of life. Research Design: Qualitative study. Methods: Four subjects with cervical muscle dystonia were included in the study. In order to find out the opinion and experience of the research participants about the quality of life in everyday life, a semi - structured interview was used. For the interview transcripts, an inductive method was used. The content analysis was used for the data analysis, which allowed processing a large amount of information by grouping it into a more detailed and shorter summary. Results: For people with cervical muscle dystonia, which affects body functions and structures, their quality of life is generally reduced. Emotional instability is one of the aspects that negatively affects the quality of life. The biggest challenge is a long stay in public places, as a result, it leads to the development of a stressful situation, which promotes an increase in head and face tremors. Conclusions: 1. Persons with cervical dystonia are considered to be adversely affected by limitations in functioning, activity and participation due to the disease. 2. Pain, uncontrolled movements of parts of the body and forced posture are physical disorders that are recognized by persons with neck muscle dystonia as important aspects that limit their quality of life. 3. Persons with cervical muscle dystonia consider that the challenge is to stay in the community and communicate with other persons, because the development of the disease changes the appearance, which in turn contributes to the reluctance of the society to contact these persons. Key words: Cervical muscle dystonia; quality of life.
Research Title: Health-related quality of life for people with cervical muscle dystonia. Objective: People with cervical muscle dystonia suffer from functional disorders that make it difficult to perform and participate in daily activities. The combination of these disorders leads to a significant deterioration in the quality of life. Aim of the Study: To find out the opinion of a person with cervical muscle dystonia about their health-related quality of life. Research Design: Qualitative study. Methods: Four subjects with cervical muscle dystonia were included in the study. In order to find out the opinion and experience of the research participants about the quality of life in everyday life, a semi - structured interview was used. For the interview transcripts, an inductive method was used. The content analysis was used for the data analysis, which allowed processing a large amount of information by grouping it into a more detailed and shorter summary. Results: For people with cervical muscle dystonia, which affects body functions and structures, their quality of life is generally reduced. Emotional instability is one of the aspects that negatively affects the quality of life. The biggest challenge is a long stay in public places, as a result, it leads to the development of a stressful situation, which promotes an increase in head and face tremors. Conclusions: 1. Persons with cervical dystonia are considered to be adversely affected by limitations in functioning, activity and participation due to the disease. 2. Pain, uncontrolled movements of parts of the body and forced posture are physical disorders that are recognized by persons with neck muscle dystonia as important aspects that limit their quality of life. 3. Persons with cervical muscle dystonia consider that the challenge is to stay in the community and communicate with other persons, because the development of the disease changes the appearance, which in turn contributes to the reluctance of the society to contact these persons. Key words: Cervical muscle dystonia; quality of life.
Description
Fizioterapija
Physiotherapy
Veselības aprūpe
Health Care
Physiotherapy
Veselības aprūpe
Health Care
Keywords
Kakla muskuļu distonijas; dzīves kvalitāte;, Cervical muscle dystonia; quality of life.