Latvijas pacientu organizāciju darbības izmaiņas Covid-19 pandēmijas kontekstā.
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Date
2021
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Rīgas Stradiņa universitāte
Rīga Stradiņš University
Rīga Stradiņš University
Abstract
Darba nosaukums: Latvijas pacientu organizāciju darbības izmaiņas Covid-19 pandēmijas kontekstā.
Aktualitāte: Pacientu organizācijas var pārstāvēt dažādas pacientu grupas, īpaši nozīmīga ir pacientu ar hroniskām slimībām interešu aizstāvība, jo hronisko slimību nozīme tiek atzīta globālā mērogā. Pacientu organizāciju darbība ir nozīmīga pacientu ar hroniskām slimībām interešu un veselības vajadzību pārstāvniecībā. Tomēr līdz šim publicēto starptautisko pētījumu rezultāti liecina par pacientu organizāciju darbības izmaiņām dažādās jomās Covid-19 pandēmijas laikā. Maģistra darba izstrāde tika uzsākta valsts pētījumu programmas pētījuma ,,COVID-19 epidēmijas ietekme uz veselības aprūpes sistēmu un sabiedrības veselību Latvijā; pieredze un nākotnes risinājumi” ietvaros un turpināta pēc projekta beigām, lai noskaidrotu Latvijas pacientu organizāciju vadītāju pieredzi Covid-19 pandēmijas ārkārtējās situācijas laikā Latvijā.
Darba mērķis: Izpētīt Latvijas pacientu organizāciju darbības izmaiņas Covid-19 pandēmijas izraisītās ārkārtējās situācijas laikā.
Materiāls un metodes: Pētījumā tika izmantotas kvalitatīvās pētniecības metodes. Darba ietvaros tika veiktas 15 padziļinātas, daļēji strukturētas ekspertu intervijas ar Latvijas pacientu organizāciju vadītājiem, kuri pārstāv pacientus ar dažādām hroniskām slimībām. Iegūtie rezultāti tika apstrādāti, izmantojot datu tematiskās analīzes metodi, veidojot atbilstošu tēmu karti.
Rezultāti: Iegūtie rezultāti atspoguļoja sešas tēmas. Četras tēmas bija par pacientu organizāciju darbības izmaiņām - ,,Informēšana un izpratnes veidošana par ārkārtējo situāciju"; ,Komunikācijas kanālu pielāgošana ārkārtējai situācijai’’; ,,Pacientu organizāciju pārvaldība’’; ,,Atbalsta mehānismi pacientu organizāciju darbībai ārkārtējā situācijā’’. Divas tēmas ,,Pacientu raksturojums’’ un ,,Veselības aprūpes raksturojums ārkārtējās situācijas laikā’’ aprakstīja pacientu veselības vajadzību izmaiņas.
Secinājumi: Galvenās izmaiņas pacientu organizāciju darbībā bija saistītas ar informācijas pieprasījuma pieaugumu, darba apjoma palielināšanos, digitālās komunikācijas ieviešanu, darba plānošanas izmaiņām, jaunu atbalsta pasākumu ieviešanu pacientiem. Pacientu organizācijas ārkārtējā situācijā saskārās ar grūtībām finanšu, resursu un informācijas jomā, kā arī pāreja uz digitālu komunikāciju apgrūtināja atsevišķu pacientu sasniedzamību, informēšanu un uzraudzību.
Priekšlikumi: Pacientu organizācijām būtu nepieciešams rast risinājumus, lai uzlabotu pacientu iespējas turpināt saņemt atbalsta pakalpojumus attālinātā formātā, situācijās. Ieteicams veicināt pacientu organizāciju un valsts sektora savstarpēju sadarbību, aktualizējot atbalsta mehānismu ieviešanas nepieciešamību ārkārtējām situācijām.
Atslēgas vārdi: pacientu organizācijas, organizāciju darbības izmaiņas, hroniskas slimības, neinfekcijas slimības, Covid-19 pandēmija, ārkārtējā situācija.
Darbs satur 65 lappuses, 3 attēlus, 2 tabulas, 5 pielikumus, 60 informatīvos avotus.
Title: Challenges of patient organizations during COVID-19 pandemic in Latvia. Issue: Patient organizations can represent different groups of patients, but it is especially important to defend the interests of patients with chronic diseases. The work of patient organizations is important in representing the interests and needs of patients with chronic diseases. The results of so far published international studies show changes in various areas of patient organisation operations during the Covid-19 pandemic. The master’s thesis was commenced while the project ‘’Impact of COVID-19 epidemic on healthcare system and public health in Latvia; experience and future solutions” was taking its place, and was continued after the end of project, thus clarifying the experience of Latvian patient organisations during the times of Covid-19 pandemic emergency. Aim: Research in changes of operations in Latvian patient organisations during the emergency caused by the Covid-19 pandemic. Materials and methods: Methods of qualitative research were used to complete the thesis. 15 in-depth and partially structured expert interviews were conducted with executives in Latvian patient organisations, who represent patients with various chronic diseases. Obtained data were processed using the topical data analysis method. Results: The results obtained reflected six topics. Four topics about changes in the organization's activities - ,,Informing and raising the awareness about the emergency situation”; ,,Adapting communication channels to an emergency situation”; ,,Management of patient organizations”; ,,Support mechanisms for the operation of patient organizations in an emergency situation”. Two topics “Characterization of patients” and “Characterization of healthcare during an emergency situation” described the changes in the health needs of patients. Conclusions: The main changes in the activities of patient organizations were related to the increase in the demand for information, the increase in the amount of work, the introduction of digital communication, changes in work planning and the introduction of new support measures for patients. In the emergency situation, patient organizations faced financial, resource and information difficulties, and the transition to digital communication made reaching, informing and monitoring individual patients more difficult. Proposal: Patient organizations would need to find solutions to improve the patients' ability to continue to receive support measures remotely, in situations where face-to-face communication is not possible. To promote mutual cooperation between patients' organizations and the public sector, emphasising the need to introduce support mechanisms for emergency situations. Key words: patient organisations, changes in the activities of organizations, chronic diseases, non-infectious disease, Covid-19 pandemic, emergency situation. Thesis contains 65 pages, 3 images, 2 tables, 5 appendices, 60 references.
Title: Challenges of patient organizations during COVID-19 pandemic in Latvia. Issue: Patient organizations can represent different groups of patients, but it is especially important to defend the interests of patients with chronic diseases. The work of patient organizations is important in representing the interests and needs of patients with chronic diseases. The results of so far published international studies show changes in various areas of patient organisation operations during the Covid-19 pandemic. The master’s thesis was commenced while the project ‘’Impact of COVID-19 epidemic on healthcare system and public health in Latvia; experience and future solutions” was taking its place, and was continued after the end of project, thus clarifying the experience of Latvian patient organisations during the times of Covid-19 pandemic emergency. Aim: Research in changes of operations in Latvian patient organisations during the emergency caused by the Covid-19 pandemic. Materials and methods: Methods of qualitative research were used to complete the thesis. 15 in-depth and partially structured expert interviews were conducted with executives in Latvian patient organisations, who represent patients with various chronic diseases. Obtained data were processed using the topical data analysis method. Results: The results obtained reflected six topics. Four topics about changes in the organization's activities - ,,Informing and raising the awareness about the emergency situation”; ,,Adapting communication channels to an emergency situation”; ,,Management of patient organizations”; ,,Support mechanisms for the operation of patient organizations in an emergency situation”. Two topics “Characterization of patients” and “Characterization of healthcare during an emergency situation” described the changes in the health needs of patients. Conclusions: The main changes in the activities of patient organizations were related to the increase in the demand for information, the increase in the amount of work, the introduction of digital communication, changes in work planning and the introduction of new support measures for patients. In the emergency situation, patient organizations faced financial, resource and information difficulties, and the transition to digital communication made reaching, informing and monitoring individual patients more difficult. Proposal: Patient organizations would need to find solutions to improve the patients' ability to continue to receive support measures remotely, in situations where face-to-face communication is not possible. To promote mutual cooperation between patients' organizations and the public sector, emphasising the need to introduce support mechanisms for emergency situations. Key words: patient organisations, changes in the activities of organizations, chronic diseases, non-infectious disease, Covid-19 pandemic, emergency situation. Thesis contains 65 pages, 3 images, 2 tables, 5 appendices, 60 references.
Description
Sabiedrības veselība
Public Health
Veselības aprūpe
Health Care
Public Health
Veselības aprūpe
Health Care
Keywords
pacientu organizācijas, organizāciju darbības izmaiņas, hroniskas slimības, neinfekcijas slimības, Covid-19 pandēmija, ārkārtējā situācija., patient organisations, changes in the activities of organizations, chronic diseases, non-infectious disease, Covid-19 pandemic, emergency situation.